About Us

The Leicestershire and Rutland Branch was established in 1986 by a small group of people who wanted to improve local support for families affected by the disease, increase awareness of their needs within the community and raise money to fund research in the hope of finding a cure for MND. It is only through the generous support of local fundraisers that our volunteers can continue this work in the community.

The Motor Neurone Disease Association (MNDA) is dedicated to working on behalf of people with MND. It provides care and support to people with MND, enabling them to live their lives to the full. This includes loaning essential equipment, training Association Visitors and running a national Helpline. MNDA promotes scientific research, and provides funding to specialists seeking to understand the disease find treatments and ultimately cure the disease. The Association speaks on behalf of people with MND, campaigns locally, nationally and internationally, demanding the best possible standards of care for all.

Our small team of trained volunteer visitors liaises with local health and social care professionals to offer direct practical and emotional support to people throughout Leicestershire and Rutland who are affected by MND, whether they are a person living with the disease, a carer, family member, friend or colleague.

We are always pleased to welcome new members to our team of local volunteers so do get in touch if you might be interested in joining us.(See “Get Involved”) Our branch volunteers help out in various ways such as giving talks, producing the newsletter, welcoming guests and serving refreshments at meetings, lending a hand at fundraising events, selling Christmas cards or by joining our local team of Association Visitors (AV’s).