Get Involved

Our branch is run entirely by volunteers and we are always delighted to hear from people who would like to join our team and lend us valuable support


Join the local team and help us make a difference

In the Leicestershire and Rutland Branch our friendly team of volunteers and supporters work together in many different ways to provide support to people affected by MND, work on the branch committee, raise awareness of MND in the community and organise local fundraising events Our volunteers come from all walks of life, bringing with them a variety of skills and experiences but, most importantly, a desire to help!.

How you can help

As a Branch volunteer, you choose how much time and commitment you want to give. Some volunteering roles involve attending meetings and events but others can be done entirely from home. Some of our work requires a more regular commitment while other roles are more flexible or occasional. So, whatever your skills or availability, there is likely to be a role suitable for you. Where appropriate, training is available and all volunteers receive ongoing support and advice from the Association’s regional volunteer support team. And, of course, the Association will refund any out of pocket expenses you incur as a volunteer.

Volunteers support the branch in many different ways, for example by:-

  • organising or supporting fund-raising events – large or small !
  • helping out at meetings e.g. serving refreshments, “meeting and greeting”
  • raising awareness in the community
  • helping with publicity, mailings and social media
  • publishing the quarterly newsletter and maintaining our website
  • selling MND Association Christmas cards
  • making things to sell at fundraising events
  • becoming an Association Visitor
  • joining the committee
  • campaigning to improve services and support for people with MND

If you are interested in helping the Branch as a volunteer, supporter or friend of the branch, do contact one of us to find out more about how you, too, can make a difference.

Could you be an Association Visitor?

Association Visitors (AV’s) offer support and friendship to people affected by MND by making regular telephone contact and visiting people either in their homes or in residential care. They provide a valuable link to the MND Association and other local sources of help.

AVs in the Leicestershire and Rutland Branch work as part of a friendly, supportive local team and receive free training as well as regular updates and support sessions. All out of pocket expenses are paid by the Branch. As well as the excellent training and support for volunteers provided by the Association, we also have a great deal of local expertise and experience to call on within the Branch. Leicester, Leicestershire and Rutland is a big “patch” so we are always glad to welcome new volunteers to the team.

If you would like to know more about becoming an Association Visitor, please contact our AV Coordinator Jenny Holmes Shuttlewood or our MNDA Area Support Co-ordinator for an informal chat about the role.

Association Visitor Alison Smith makes an Easter visit

Why do you volunteer?

Whilst working in London I was an AV there and began my stints on the evening telephone helpline CONNECT. 

In all of my roles, I have been privileged to meet some amazing people and it has been an honour to share a small part of their lives; yet whilst I will continue in my various roles, I long for the day when we all become redundant!' 
'My name is Ruth Johnson and I am Vice chair of the branch. I have been on the committee since about 1995 when I lost my mother to MND. also in this photo is Paul Johnson my son who is also on the committee. The MNDA is the charity we support whole heartedly as a family as obviously this is extremely close to our hearts.'
"I have been an association visitor for 16 years. In that time I have met so many wonderful people who have inspired me with their positivity, strength and dignity.

Previous to being a association visitor I had worked as a nurse in palliative care for 12 years and again had always been inspired by the patients with MND and also the support the MNDA had provided. This led me to my volunteering role.
'I became an Association Visitor for the MNDA in 2016, after I lost my partner to MND. I am also a member of the Leicester and Rutland Branch committee'.
I think everyone should give a little something to their community and this is one way I've been able to make a contribution. In the same way that people perform different roles and jobs in their working lives. I've gained so much from being involved with the MND Association. It's brought many new experiences, people and friends into my life and, now I'm retired, I'm glad I can still be useful.'

Become a member

Membership of the MND Association is free to people living with MND and their carer. As a member of the Association you will receive a membership card, our regular magazine Thumbprint, full of information – the latest news in care and research as well as features on how some families cope daily with MND, an automatic link to your nearest branch/group and opportunities to get involved at a local level. You will also receive invitations to the conferences and seminars organised by the Association and the Annual Review/Impact Report which outlines the progress made over the last financial year and our plans for the year to come. Full membership also entitles you to elect Association trustees and vote at the Annual General Meeting. If you are interested in becoming a member, see the Association’s website or contact MND Connect on 0808 8026262.

Help us raise funds

We are always delighted to hear from people who want to raise funds for the Branch as it is only through the generous support of the local community that we can continue the fight to maintain and improve the levels of care for those who are living with the disease as well as helping to fund vital research programmes.

If you are planning to organise a local fundraising event for the MND Association or to support our branch, do contact us for information about the support we can offer locally. If you would like the money you raise to come to the Leicestershire and Rutland Branch, please make sure you state this on all your publicity.

We can help you

  • Obtain MND Association t-shirts, sponsorship forms and other items such as collecting buckets, banners, balloons etc.
  • Publicise the event through our branch website, newsletter and social media
  • Arrange for one of the team to give a talk to your group, colleagues or friends about the work of the Association and how the money raised will be used to support people affected by MND.
  • Find volunteers to give a hand on the day

Just email us at or contact one of our branch team.

You can also contact the MND Association Fundraising team on: 01604 611 860 or email

Be a campaigner

The MND Association campaigns and raises awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by the wider community. Branch volunteers and supporters can make a big difference by taking part in the Association’s campaigns and by bringing the needs of local people affected by MND to the attention of our local and national politicians and health care providers.

Do get in touch if you are interested in helping us create positive change to the lives of people living with MND and their carers and by getting involved with MNDA’s current campaigns. For more information or, if you have an issue you’d like to campaign on, please get in touch with the association’s campaign team by emailing

Harborough Council adopts the MNDA Charter

We are very grateful to South Leicestershire MP Alberto Costa for supporting our branch and helping raise awareness of MND. He’s pictured here at an MNDA Parliamentary Reception with MNDA Patron Charlotte Hawkins (TV Presenter and “Strictly” contestant!) and Branch Member Ruth Morrison.